What is EB?
Watch our animation which explains EB and what
life is like for those living with the condition.
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life is like for those living with the condition.
Supporting those suffering with EB.
DEBRA Hong Kong is a charity that supports individuals and families affected by Epidermolysis Bullosa (EB).
What is Epidermolysis Bullosa (EB)?
courtesy of DEBRA of Austria
Epidermolysis Bullosa (EB) is a group of genetic skin conditions that cause the skin to blister and tear at the slightest touch.
Those born with EB have skin so fragile they are called 'butterfly children' – their skin is quite simply as fragile as the wings of a butterfly.
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Those born with EB have skin so fragile they are called 'butterfly children' – their skin is quite simply as fragile as the wings of a butterfly.
Caring for EB Patients
Caring for EB patients requires specialised skills, please find below resources that can help
Caring for a New Baby with EB
Help with New Patients
Pain Free Washing
Frequently Asked Questions (FAQs)
Make a Difference
Please help us fund vital healthcare such as specialist EB nurses as well as research, care and life-changing support.
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News
About DEBRA Hong Kong20 May 2024
The second Hong Kong Epidermolysis Bullosa conference was held from February 27th-28th, 2023 at the Hyatt Regency in Shatin, Hong Kong.read more
20 May 2024
Debra Hong Kong hosted a family dinner on September 9th, 2023 at the Royal Gzarden Hotel in Tsim Sha Tsui East.read more
20 May 2024
Debra HK has sent volunteers to meet with EB families and caregivers to distribute bandage samples and provide essential information.read more
DEBRA Hong Kong is a charity that funds research and healthcare to support individuals and families affected by Epidermolysis Bullosa (EB) – a painful genetic skin blistering condition which, in the worst cases, can be fatal.